7 years ago, when Lynn and Majid welcomed Alia, their eldest child into their family, little did they know the extraordinary journey they were about to go on with this beautiful baby girl. Alia was just 19 days old when she started having seizures multiple times a day. After seemingly endless rounds of tests, hospitalisation, missed growth milestones and meeting doctors all over the world, the anxious couple finally got their answer.
Alia was diagnosed with an extremely rare genetic condition called the cdkl5 deficiency disorder.
Lynn and Jafar were determined to find out everything about this condition and devoted the next few years to giving Alia the best possible treatment. Their first priority was to work on Alia’s mobility and then on her speech. In this regard Lynn started closely interacting with various experienced therapists and acquainted herself with the different kinds of therapies that could help Alia.
This relentless pursuit of different therapies scattered across the globe proved exhausting for Alia and led Lynn to an important realisation.
And an epiphany of sorts.
How about opening a centre for super special needs children that facilitated all therapies under one roof, right here in Dubai? Given the support the city gives to people of determination and its strategic geographical location, it seemed like an obvious choice.
After talking to several international experts as well as local therapists, and receiving an overwhelmingly positive response, the idea seemed more right and more real than ever.
And that’s how in November 2017, High Hopes was born.